I have been told by some concerned loved ones that my writing may be too focused on MS and they were concerned i gave it too much attention.The following is how I explained it to them because it honestly how I feel and I appreciated that they brought it to my attention.
You are the reason I put it all out there. I expose what I think I would have appreciated being told or reading about back when I received my dx. I write these personal topics because I know they are reaching people who are not able to say it for themselves. People who are uncomfortable, scared and just lost. I write for the people who thought they were only ones dealing with this. It’s important for both the people going through this and also those who are unfamiliar with what actually goes on.
The only thing I dont write for is, sympathy. All I have ever wanted to accomplish with this blog is helping others, sharing my views and experiences. All I have ever wanted to do is help others and my writing makes me feel like I am finally in the right direction. Being in the Army, helped and being a volunteer Firefighter also helped, but this is something big.
I remember the first set of tears I shed the moment I was told, “I think you have multiple sclerosis” by a fairly uncertain and socially awkward Chinese Neurologist, who originally told me I was too stressed and prescribed me Xanax. Yeh, that guy.
So if that is what I had to deal with, I know someone had it worse. There is also a chance that “someone” may also be a private soul, that does not want to discuss this or just doesnt have a support structure like some of us lucky people do. Whatever the case, these people are out there and friends to some of us. My writing is for them.
Nobody should been left alone with only the doctors explanations and their own mind. It’s just not enough, people need information and strive to find answers. With a diagnosis, you constantly want answers. The issue I have is, what would the answers get you. I have had many unexplained situations in my life and looking back, I dont think answers would have improved many of them.
Sometimes what you dont get, is answers but it doesnt mean we cant talk about it.







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